Book a Consultation
Sometimes you do not need another article. You need to talk to someone who has been there. Pick the one below that fits where you are.
I'm a person living with PCD, not your doctor. A consultation helps you understand and ask good questions; your child's metabolic team makes the medical decisions.
Newly Diagnosed Family Consultation
For the first days and weeks. We make sense of what you were just told and sketch a plan to bring to your medical team.
Parent Consultation
For day-to-day questions you have not found clear answers to, from someone who grew up with PCD.
Teen Consultation
A space just for teens: taking over your own medication, school, friends, and talking to someone who gets it.
Insurance Navigation Consultation
Help getting carnitine, specialist visits, labs, and prior authorizations covered.
Supplementation Options Consultation
For families whose standard carnitine routine is hard to manage and who want to understand other options to raise with their doctor.
College Readiness Consultation
For older teens getting ready to manage PCD on their own at college.
Ready to book?
Fill this in and it comes straight to me at hello@carnergia.org. I reply from my own email to set a time. Nothing you type here is stored on the website.